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KMID : 0894920110110030035
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Journal of the Korean Association for Persons with Autism
2011 Volume.11 No. 3 p.35 ~ p.65
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Status of Children with Rett’s Disorder and the Stress and Role Satisfaction of Their Parents
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Im Hyn-Joo
Lee Seung-Hee
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Abstract
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This study aimed to examine the parents’ perception on the status of children with Rett’s disorder, the stress of their parents, and the role satisfaction of their parents. To do this, 86 parents(43 fathers and 43 mothers) of 43 children with Rett’s syndrome were asked to complete a questionnaire, who were registered in Korea Rett Syndrome Association(KRSA). The data from the questionnaires were analyzed using descriptive statistics/t-test and the results were as follows: a) In respect to the status of children with Rett’s disorder, parents’ responses were similar in 31 questions out of 36 questions about rearing, education, medical treatment, or related treatment. b) The degree of parent’s stress was a little higher than it of parents of normal children or children with other disabilities. And there was no difference between fathers and mothers in total stress and subtypes of stress except 1 subtype(daily-life related stress) in which mother’s stress was higher than father’s. c) The degree of parent’s role satisfaction was lower than it of parents of normal children but not lower than it of parents of children with other disabilities. And there was no difference in role satisfaction between fathers and mothers. The results were discussed in relation with previous research and several suggestion were presented for future related research and tasks.
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KEYWORD
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Rett’s disorder, Rett’s syndrome, rearing, education, treatment, parent’s stress, parent’s role satisfaction
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